Chemo Day Went Well.

Jesse had chemo today, and we was able to talk the doctors into giving him a low dose this round!! YEA! we are just hoping that he is in good enough shape by Sunday to go to Camp Quality, and if not we are sure he will get to go on Monday.. his counts were good, and everything else went well. we also visited the neurologist today after his chemo visit. they just wanted to check him out and give us refills on his seizure meds. we are due back there July 19 for a MRI with and without contrast just to see if the abnormality has changed any. and we are due back at Kosairs that same day for the dreadful L.P. (spinal tap)
He went camping at Blue river with the Boyscouts over the weekend. he enjoyed fishing and taking a 14 mile trip in a conoe. (I think the best part of his camping trips is the food)! we have a meeting tonight with boyscouts to talk about the upcoming week stay at Crooked Creek boyscout camp in Kentucky. (NOT tunnel mill as last posted)
He has been in GREAT spirits and has had a very positive attitude the last few weeks, we hope that he can keep it up for awhile. thats about it for now, Thank you for visiting!!

Happy Dads day!

Well, everythings been going good. Jesse passed with better than expected grades!! now its summer time, and we are in for a busy one! he just got back today from a conoe trip at Blue River with the Boyscouts, he said he had a great time. he has been feeling pretty good for a few weeks, but tomorrow he is due chemo again. we planned it a week ahead of his Camp Quality trip that he goes on this coming Friday so hopefully he will be over most his pains by then. we are asking the doctors to maybe give him a lower dosage if possible too. but once he makes it through the week, he will be at the Country Lake Retreat Center in Henryville(camp quality) for a full week of hiking,fishing,etc. http://ky.campqualityusa.com/ ...
We will be back soon with his chemo updates.
Lift Jesse in your prayers this week. Thank You.

Getting Better!

We have had a good weekend so far, Jesse hasn't been doing much. (we wont let him!) but his pains are in the past, and he should be able to go a few weeks without any more issues. we are hoping for a full week of school out of him this week, giving its the last one! he is excited to get the summer started, his Camp Quality is coming up in a few weeks, it is a week long camping trip to Christian Retreat Lake in Henryville with other children with life/non-life threatening issues. then the same day he returns from there he is off again to another week camping trip with the Boy scouts. they will be staying at TunnelMill in Charlestown In. and believe it or not, the week he returns from that adventure, we will be leaving out for his "Make A Wish" vacation in Missouri.
We are starting to work on getting organized for this years "Jesse's Ride". we are planning to do a little differant ride route, due to the overwhelming amount of request. but we will still continue to start and end from American Legion in Scottsburg. we are hoping to have the same menu as last year, and we are redoing the way raffle tickets and door prizes are handled. its been a mess the last few times, and we are going to get a dry erase board and draw tickets when everyone is on the ride, that way when everyone returns, they can go by the board and check there ticket to see if they won anything. for any suggestion you can call, e-mail, or post here at the site. Thanks for visiting!

CCombs00@verizon.net
812-889-3054

Bad Week

Jesse had his chemo on 6/25 via access port. (no LP) but the vincristine and steroid done a number on him this week. after chemo, Jesse went to his grandparents for the 3 day weekend because they were camping, and we believe that was where he may of over done it. we normally keep him on the D.L. the weekend after chemo, but we chanced it because Jesse doesnt get to camp much. he hasnt been to school but just for a few hours all week, and we are hoping that we can get him back into shape before Monday. Please lift him in your prayers, Thanks for visiting!