We are still here!

Sorry everyone for the huge delay, This has been the far most busiest year we have ever encountered!!! doctor after doctor visits, treatment after treatments, its been truly "nuts"!!
Anyway, since last blog, we had JessesRide2010, it wasn't as big as the last few years rides but we did get about $1200. we still got plenty of BBQ and bottle water!!LOL!!.. but it was a great ride with no one getting hurt. almost everyone got a door prize! and we got to meet a lot of friends we haven't seen in awhile.
Aside from the doctor visits and such, Jesse has been doing a lot of camping and such with boyscouts. that has been a great thing this summer, before he had summer baseball, but he seemed to always not feel good and stayed exhausted with it. so this year we talked him into boyscouts, and it has been a great choice. he has really enjoyed it.
We also want to give a shout out to our friend ViviAnne. she is finished with chemo!!! we are so glad to see that she is done with it. Happy NewLife Day ViviAnne!!!! but we will miss you at clinic!!! http://www.viviannegrace.blogspot.com/ (Kristen, you have one year to let us know how its going to be on the "other side"!!LOL)
Jesse has one more year with treatments. 10/10/2011 will be his last, and we are looking forward to it. We wont know what to do when it comes to his chemo visits, the pains he gets, the crying,screaming, all the doctor visits, meds, hand sanitizer and oh yea, the pharmacy!! we cant forget that, I bet they go bankrupt after we tell them Jesse wont be back!! who would of thought that those pills could be such a huge daily hassle!??!! each day with a different doses,mlg's at different times, and you have to remember to refrigerate the liquid??!! we cant say enough on how much this is life altering. every day is a challenge with schedules and meds. "everyday"!!
and on top of all that, we have to juggle last minute decisions either he can go to his grandparents house for the weekend,camping,boyscout meetings, school all due to his current state of health and or if some one else is sick that he might come in contact with. its never ending, every day and minute consumes us whether he is home or somewhere else. "BUT" in the end we know that the hell we have been in the last 4 years will be well worth it! knowing that we don't have to worry about (hopefully) never again. knock on wood, with the end of chemo. end of chemo only comes if blood work approves of it! but we can only hope for the best.
The end of chemo will be a start of a fresh, new life!!
Again, Sorry for the delay on the posting. and Thank you for visiting.
Chris, Amy.

Quick Update.

Jesse had a great time at the Ride For A Cure Saturday, he is excited about his upcoming ride event this coming Saturday 25th. we are almost prepared for it, we are still needing bottled water and soft drinks. Jesse going on the ride last weekend did come with some consequences. he started hurting that night and it didn't stop until Sunday night. it was bad enough where he had to take oxy's for the pain. he didnt get out of bed all day Sunday, he stayed wrapped up in heating pads and watched movies in his room all day. but he is over it now, Thank God!!
Also he is going today to see a endo, doctor about seeing if he can get growth hormone shots. this was ask of us by his doctors at Kosairs. he is little anyway, but the chemo has held him back for years now. so he is way smaller than he should be. we will be back with more info on him and the ride later. Thanks for visiting..

Chemo Visit..

Just wanted everyone to know that chemo went as well as expected Monday. his numbers are looking good, but h did have a seizure the next day at school. the doctors said that if it happens again to let them know and they will up his seizure meds. he is due a chemo treatment next month with both access port and spinal tap(lumbar puncture).. and it will be a giving that he will be missing some school.
We are almost ready for this years JessesRide. we still need donations and bottled water,sodas, and a few more door prizes.. and if anyone has a food donation such as covered dish, desert,etc, please let us know and will will pick it up at your convenience, or you can drop it off at the American Legion post234 in Scottsburg by 4:30pm on the 25th(Saturday after this).. we don't expect it to be as hot this year, Thank God! but we are praying for "NO" rain that day!!
Thank you for visiting...

Quick Update.

Jesse is doing well. He had chemo on the 16th, and did have some leg/back pains from it, but not as bad as usual. the doctors didn't like a few things about his blood work and had him come back in on the 23rd to get a partial blood transfusion. he has been unstoppable since!! we have been busy getting the ride event organized for this year. we are still needing door prizes, we only have a few. other than that it looks to be a good time. I also have a facebook now for JessesRide. that's about it for now, we are going to go out and enjoy this weather!! Thanks for visiting!

Jesse's Birthday

Just wanted to let everyone know that Jesse is doing well. after chemo last month we kept him indoors and settled him down for a few days and it worked great. he only had a few bad days,(Sat,Sun).. but rebounded quickly. we are getting ready for another visit to the chemo clinic on the 16th of this month. again we will keep him settled down a few days before chemo and about a week after to keep his pain down to a minimum.. He just had his 13th B-Day yesterday, Aug 3. we will be having his party this weekend with one on Friday evening at our friends Jeff and Shasta Coomes, which is having Jesse and a few of his friends over for a "pool party" and we will be having his party on Saturday evening at around 5:00pm. we will be grilling hot dogs and some burgers, and having cake and ice cream. as always, everyone is welcome! I am also putting a link to our photobucket site where most of Jesse's make a wish vacation pictures are, hope you enjoy them. Thanks for visiting, stay cool!

CLICK HERE TO VISIT OUR PHOTOBUCKET http://s980.photobucket.com/albums/ae281/ChrisAmyJesse/?start=all